Each year the current Dublin Rose chooses a charitable organisation for the Dublin Rose Centre to partner with and raise funds for. In 2016, Dublin Rose Lorna Whyte selected SavingDylan.com as her chosen charity. The main event of the year regarding our charity efforts is the Dublin Rose Gala Ball and we are delighted to report that when proceeds of ticket sales, a raffle and an action (expertly directed by our very own master auctioneer Brian McCarthy!) are added together, we raised €10,100 for this very deserving cause.
Alan Finglas, father of Dylan Finglas said:
“Thank you to The Dublin Rose of Tralee team for their stellar efforts with The Dublin Rose Ball in aid of #SavingDylan. It raised a whopping €10,100euro. We wish to thank all that attended & supported. The raffle & auction raised a great amount. Thank you Steve Cronly, Brian McCarthy, Lorna Whyte & Lyn Moloney, without you guys it would not have been possible. We are most grateful to you all.” – Alan Finglas, Rose of Tralee
Steve Cronly, Lead Co-Ordinator, Dublin Rose Centre said:
“We were delighted to partner with SavingDylan.com this year and do all we could to help out such a worthy cause. For those of us in the Rose of Tralee who had the pleasure of meeting and spending time with Dylan and his parents, we were struck by their desire not only to do everything they could to help their son, but also to help those other children and parents who are affected by this rare but very serious disease. We encourage everyone to do what they can to support SavingDylan.com and the MSD Action Foundation” – Steve Cronly, Rose of Tralee
More about Dylan
Dylan’s quality of life has been affected by this devastating illness called Multiple Sulfatase Deficiency. Without something to stop deterioration, most children won’t live to see their 10th birthday.
Rapidly in the next years, unless treated, most or all of the following will be affected; his sight will be compromised & lost, hearing will be lost, the ability to walk/stand, the ability to swallow and his organ functions will deteriorate and eventually fail.
Children with MSD would be expected to have severe brain damage by the age of five or six. This tragic outcome is inevitable. It is a 100% certainty unless the treatment is developed for humans. Currently there is no ready cure, nor is there any approved treatment to slow the condition. It’s any parent’s worst nightmare to have to watch their innocent child’s health and wellbeing deteriorate.